Bonsoir Ghislaine,
Je suis atteint de LMC et mes sueurs nocturnes ont disparues avec la prise du médicament Gleevec. Comme je prends d'autres médicaments, mon foie est engorgé. Si je triche le soir en prenant des sucreries, des gâteaux, des fromages ou autres, alors j'ai des sueurs nocturnes. Mais la plupart du temps, je n'en ai pas.
Certains patients de LMC mentionnent que malgré qu'ils prennent le Gleevec, ils ont occasionnellement des sueurs nocturnes. Pourtant, ils ont des bons résultats du test Q-PCR pour la leucémie. Je doute en premier lieu que c'est ton foie qui donne des signes d'engorgement (alimentation + médication). Vérifie auprès de ton hématologue les valeurs relatives à ton foie. Les sueurs noctures peuvent être aussi provoquées par une multitude de raisons.
Bonne chance, Gilles
Groupe de discussion de LMC- Thème : sueurs nocturnes
In
CML2@yahoogroups.com, "Tracey" <traceyincanada@...> wrote:
Tracey,
I had night sweats before I was DX.I pretty much stopped haing
them after my counts returned to normal as well.It was one of the
syptoms that had me seeking medical advise to begin with,along with
very strange labs.
I thought I was going through the change early.I was about 37 or 38
when they and the unusual labs began>I wasn't DX until May 08
though.I think I have had it for awhile before I got DX.The checked
for Cushings and a few other things not finding any answers.
SharonS
Night sweats were my only symptom when I was diagnosed. I was
literally soaking through the bed and towards the end, I was actually
sleeping with a bath towel ....and soaking through that too! At
that point I knew it was time I went to the doctor.
Those massive sweats went away when my counts returned to normal
but even now I get sweaty on occasion, not to the point where I soak
through a bath towel but enough to make me wet and need to change
my pj's.
I don't know what to blame but my guess is hormones as my CML is
well controlled. I believe that night sweats are listed as a side
effect of Gleevec but I don't know if I believe that to be the cause for
myself.
Tracey
--- In
CML2@yahoogroups.com, "Eva" <evaob365@> wrote:
OMG I have had night sweats for 2 yrs and was dx in March of this
year . My regular doctor put me on Effexor (a antidepressant) for
what he told me were hot flashes. I still get them constantly in
fact
I think they are worse since I have been on Gleevec.I would love to
know if it is just the CML or has the Gleevec made them worse. They
wake me up at night. Thanks Eva
From: Rebecca Rosen Lum
Sent: Tuesday, October 07, 2008 8:12 PM
To:
cml2@yahoogroups.com
Subject: RE: [cml 2] night sweats
Before I got diagnosed, I was sleeping a good 12 hours a night,
napping whenever possible, and experiencing night sweats regularly.
And I had a very fuzzy-headed feeling. I went to the doc not sure
what to expect but was stunned to learn I had CML.
To:
CML2@yahoogroups.com
> From: jclmal1998@
Date: Tue, 7 Oct 2008 23:29:58 +0000
Subject: [cml 2] night sweats
I get night sweat now and then. Is it from the cml or gleevec or coincidence ?
___________________________________________________
Re: Night Sweats
So true, so true!
I have sweats--they are the bane of my existence! They will not stop
no matter what. I have been in remission for a while and they still
have not stopped, even when my white counts are down. I am about to
go to an endocrinologist to find out if I have a brain tumor or
something going on--it is that bad. Drenching, multiple times per
day. I am almost afraid to do activities because of the discomfort
and embarrassment of having a dripping day.
What to do?!
Vicki
--- In
CML2@yahoogroups.com, "Lottie Duthu" <lotajam@...> wrote:
>
> Hi, I, too had terrific night sweats and it wasn't because of
hormones, I was already on them, it was the CML. I would sleep on
beach towels and get up and change them every other hour or so. I
also found that working outdoors, the sweats would come and blind me
because of the salt dripping from my scalp and face. When I was
diagnosed and got my wbc under control, the sweats stopped. So
depending on whether you are male or female, are on hormones or just
beginning the menopausal cycle, you may be sweating for a different
reason. Now, where else could you talk about something like this,
but here?
> Blessings,
> Lottie
_______________________________________________
Tracey <traceyincanada@...> wrote:
Hi Anita,
I totally understand the fear you are experiencing with the night
sweats. That was my only symptom on diagnosis so now I automatically
associate any night sweats with active CML.
The reality though is that night sweats are not necessarily due to
CML. I've been on Gleevec for 6 years now and have had a 3 log
reduction for the last couple of years yet I still have occasional
night sweats.
I suspect that hormones play a role as do many other factors. I've
noticed that even my husband (who's perfectly healthy) has occasional
night sweats as well so don't worry right away that your night sweats
are due to CML.
Many doctors recommend bone marrow transplants for patients who were
diagnosed in blast crisis, even if they respond well to drug therapy.
Is this something you've considered?
Tracey
--- In
CML2@yahoogroups.com, "Anita" <awristen1@...> wrote:
I woke up with night sweats this 3 am. Should I be alarmed I am (47)
maybe just change of life? I have a dr. and blood work appts this
tues.
Am on 90 mg of sprycel since may 2006, dx'd april 2007,I reached
cystogenic remission for less than a month in nov.. Was dx'd CML
blast crisis and 2nd doctor said I had maybe 2 yrs because I was in blast
crisis when dx'd. So needless I feel concerned. Hoping you guys would
relieve my mind.
All in put would be greatly appreciated.
God Bless Anita
>
